Tuesday, July 23, 2019
I could not decide the research question. Could you decide it and Paper
I could not decide the question. Could you decide it and write for me - Research Paper Example If an individual tests positive on a genetic test, they have a genetic predisposition to a disease, which is defined by the National Institutes of Health (NIH) as ââ¬Å"increased susceptibility to a particular disease due to the presence of one or more gene mutations, and/or a combination of allelesâ⬠¦ that is associated with an increased risk for the disease, and/or a family history that indicates an increased risk for the diseaseâ⬠(National Library of Medicine 2010). Knowledge of a genetic predisposition allows an individual to take preventative measures to limit the effects of a disease or to otherwise prepare for the onset of a disease. Because genetic testing is extremely beneficial as it can provide an individual with information about their susceptibility to a disease and allow them to take preventative measures or screening measures, healthcare organizations and institutions should promote mandatory genetic screening for children among indigenous populations. The problem of informed consent and genetic screening has been a widely debated issue, particularly in medical field. For instance, most guidelines expressed by medical organizations contained recommendations against testing adolescents and children for hereditary late-onset diseases. It is important to remember that respect for the individual and valuing of autonomous decision-making are the moral and ethical cores underpinning informed consent. This written, and often oral, process provides important information that aids potential participants in their decision to participate in a research study. By providing adequate and comprehensible information, an informed consent enables independent decision-making and may minimize participant harm. Basic ethical principles such as beneficence, nonmaleficence, fidelity, integrity, justice, and respect for persons help guide our understanding of informed consent; however, the practical application of such a process is rarely as simple or
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